Sciensus and Rare Patient Voice share new insights that reveal critical opportunity to improve care pathways When nearly half of respondents describe travel as a meaningful burden, it signals a clear ...
As Rare Disease Day approaches, the lessons from recent European launches are clear: success comes from disciplined operating models, disease‑centred engagement, pragmatic evidence strategies, and ...
From routine infections to emerging health threats, being prepared matters. Dr Lennie Derde, newly appointed CEO of the Ecraid medical research network, explains how European collaboration and EU ...
“Working in rare diseases since 1996 has shown us that innovation is never a solo effort,” emphasized Melissa Fellner, Vice ...
At its conference in Bilbao, the European Economic and Social Committee (EESC) urged the European Union to launch a European action plan stepping up cooperation between national health systems. The ...
A high-level conference convened in Warsaw under the auspices of the Polish Presidency of the Council of the European Union highlighted the importance of adopting a comprehensive Europe-wide policy ...
Two European-based biotechs—Indivi of Switzerland and Clouds of Care of Belgium—have inked a collaboration deal with the goal of leveraging precision medicine tools to boost the early phase of ...
The European Conference on Advancement of Treatments for Rare Diseases will take place on March 5 and 6, 2026, at the Institute of Neurology and Genetics (INNG) in Cyprus, organisers have ...
New disease-modifying agents are being evaluated in the clinic that could change the course of treatment for Alzheimer’s disease patients. Regulated industries like pharmaceuticals, biotech, and ...