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Matter of Time,” a documentary featuring legendary rocker Eddie Vedder premiering this fall at the Tribeca Film Festival, is ...
This rare genetic condition causes hyperflexible joints, fragile skin, and possibly other symptoms, depending on which of 13 ...
9d
MyChesCo on MSNPalvella Therapeutics Showcases Progress on QTORIN Rapamycin Gel for Rare Genetic DisorderWAYNE, PA — Palvella Therapeutics, Inc. (Nasdaq: PVLA) announced the presentation of its investigational therapy QTORIN™ ...
The documentary shares the story of Vedder performing a two-night show in Seattle with the direct goal of helping finance research to find a cure for genetic skin disease. A little spoiler alert ...
a rare genetic skin disease that causes blisters and skin erosion and predominantly affects children. Proceeds from those concerts were directed to EB Research Partnership (EBRP), a foundation co ...
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