Home | Cystic Fibrosis Foundation
Sep 18, 2024 · Caring for a Child With CF | Diversity, Equity, and Inclusion How We Found Strength and Support in the CF Community. Sept. 17, 2024 | 10 min read. Abraham Medrano. For General Inquiries. 800-FIGHT-CF (800-344-4823) Cystic Fibrosis Foundation (national office) 4550 Montgomery Ave. Suite 1100 N Bethesda, MD 20814.
Patient Registry - Cystic Fibrosis Foundation
The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the Registry. This information is used to create CF care guidelines, assist care teams providing care to individuals with CF, and guide quality improvement initiatives at care centers.
Intro to CF - Cystic Fibrosis Foundation
For help with Insurance, Financial, Legal, and Other Issues. Contact a dedicated CF Foundation Compass case manager: Call us at 844-COMPASS. (1-844-266-7277) Mon - Thu, 9 am - 7 pm ET Fri, 9 am - 5 pm ET. More Ways to Get Help. Cystic fibrosis is a genetic disorder that affects the lungs, pancreas, and other organs.
Clinical Care Guidelines - Cystic Fibrosis Foundation
ARTICLE. Cystic Fibrosis-Related Diabetes Clinical Care Guidelines. As early cystic fibrosis-related diabetes (CFRD) may be clinically silent, these guidelines highlight the importance of regular screening. Management recommendations focus on insulin therapy and ongoing care by a team with knowledge of CF and diabetes.
About Us - Cystic Fibrosis Foundation
About Us. Mission We are in a relentless pursuit of a cure. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. Our Mission.
About Cystic Fibrosis
Cystic fibrosis is a progressive, genetic disease that affects the lungs, pancreas, and other organs. There are close to 40,000 children and adults living with cystic fibrosis in the United States (and an estimated 105,000 people have been diagnosed with CF across 94 countries), and CF can affect people of every racial and ethnic group.
CF Circles - Cystic Fibrosis Foundation
About CF Circles. Feel heard and share your experiences with others through CF Circles. These topic-based, hour-long small group discussions allow primarily adults with cystic fibrosis to gather virtually with a handful of people to talk about their unique experiences, such as not benefiting from CFTR modulators, receiving a delayed CF diagnosis, living as …
Get Help With CF Foundation Compass - Cystic Fibrosis Foundation
Get help by calling 844-COMPASS (1-844-266-7277) to speak with a dedicated case manager. You can also email us at compass@cff.org or submit an online service request. **NOTE: It may take 3-5 business days for your case manager to review your email or Compass Online Service Request form before contacting you.
CF Foundation Estimates Increase in CF Population
July 28, 2022 | 4 min read. Today, the CF Foundation announced that the population of people with cystic fibrosis has increased over the past decade, according to a new estimate. Close to 40,000 children and adults are living with cystic fibrosis in the United States and a total estimated 105,000 people have been diagnosed with CF across 94 ...
Our Mission - Cystic Fibrosis Foundation
Our Mission. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care. 4 min read. In this article.